Thanks for the great question! Wishing you well, Diana (\__/) (o.O ) (> < ) This is Bunny. Thats crossing the line to being a Quack. After reading your article I cut out olive oil as a test (I am already fruit free for months due to apparent intolerance). Many blessings and continued wellness to you!! This means your gut doesnt have the machinery or enzymes to break down and eat a certain food. Thank you! Its called a Food Intolerance Evaluation: http://www.songofhealth.com/carrollhistory.html. End up with stomach issue from Elmiron , not on it anymore. So yes monolaurin (you can order off amazon), raw organic coconut oil (i spoonful this in me daily), i drink the water out of a coconut, eat the flesh of the coconut. But the diet and eliminating food intolerances are the first and most important steps, in my opinion. I dont want to live like that forever. Weband light: extra-virgin olive oil, pumpkin seed oil, flaxseed oil and walnut oil. I have looked at the gaps diet cookbooks and they are using these ingredients so I have not purchased them. No UTIs, have been checked twice. In addition, we tried no pork as well, since were already doing a gut-healing low-vitamin A diet. Now, the solution is more elusive; and thats why were here today! Ill never drink 8 cups a day, and I dont always drink the four, but I have an idea of how much Im drinking and then I also measure how much I pee. His body was misunderstanding dairy as the enemy because it was intruding where it wasnt supposed to, leaking through. Nut butters are okay for use in moderation and raw versions are best. Thank-you so much you are so kind. Hi thank you for responding! Thank you so much! Foods and beverages containing artificial sweeteners. The supplements on this list attempt to provide the molecules that make up the bladder lining, giving the body the 'building blocks' to repair the bladder lining. But there are some other alternative methods that I occasionally hear about. (Again, when I was in better health and living in San Diegos sunshine, I could eat fruit. Bladder wall flares react well to heat as do muscle flares. Im feeling pretty discouraged right now. probiotic which is a soil-based bacteria/yeast that is super gentle. I no longer have the urge to pee every 5 seconds even when i have lemon (my trigger). The benefits of coconut oil are endless. I have just been diagnosed with this painful disease. Super duper bummer. Hope that answers all your questions. These common strains, despite being good bacteria, quickly overgrow in the small intestine and make those with SIBO bloated. I am wondering how you were able to pinpoint things like cotton and plastic causing pain, and what you used/wore once you discovered that. Thank you for sharing! Excessive drinking of water and coffee and tea for years. I also think that vagus nerve, nervous system, has something to do with reflux and IC? Use pumpkin and sweet potato to make treats. Like to go as natural as I can. Yes, I found tremendous healing at that stage. Im curious as i may want to ask my ND for that test. You can also try probiotics like Prescipt Assist (http://amzn.to/2tBUgTT) or Sacc. Cant thank you enough for posting this! I have IC. But it is strange on how me consuming the little fruit I was consuming could actually have led to this condition . I have still been using organic olive oli for cooking beef, what if I have fruit intolerance, is olive oil forbidden then? Hi Kay, which links are you referring to? When I had IC, it felt so hopeless because every forum seemed to be women talking about how there was no cure, even calling people liars who were healing with natural remedies. A little hard work, a little sacrifice is worth it~ for wellness! It is a mindset shift, I know; but FEED yourself, knowing you need it to get well. Hugs! But, those foods did not affect my IC either way except that I can not have grains + potatoes within 4 hours of each other, or my IC flares the same way it would with fruit. How to Cure Interstitial Cystitis Naturally Drumstick Flowers and Coconut Water Treatment Squeeze out the juice of fully grown flowers of drumstick. I am now 16 months into IC, or some type of similar bladder issue. This support will be a deal-maker for your son. kit in the mail. Put one teaspoon of baking soda in water and stir, then drink. All the best, Silvia. How it works is unknown, but it may restore the inner surface of the bladder, which protects the bladder wall from substances in urine that could irritate it. Ive literally gone into Anaphalaxis from BioKult and FLCO even though I had been taking them for 4yrs at the time (2yrs ago). I have done every treatment possible but never anything related to diet. Furthermore, trigger foods and drinks can vary quite a bit for each case. It has magical powers i swear by it. Ive been having coconut oil instead. I thought I was going crazy but your article shed so much light and helped me SO much. I am so happy to read this and see you have healed yourself, as I am also on my journey to heal my cystitis. Hi Tim, thanks for your thoughts and insights! Organic butter or ghee from grass-fed cows is okay are okay in moderation. Also have been thinking candidiasis / yeast. Such a bummer but so much better to be symptom free. Ive been in the middle of a flare up for several days and I am having some aha moments. Find the diet that blesses your body! Ive never known anyone to flare from it. The good news? Animals eating what they are meant to eat produce healthy meat and fat. The past couple of years I seriously and religiously deviated from whole grains and white flour products, opted for organic as much as possible, cut down red meat, citrus fruits and all caffeinated drinks. I was wondering when you started eating bone broth In that first week did your spasms (if you got then) get way worse ? I live in Brookings, Oregon which is about 6 hours away from Dr Zeff and decided to at least give him a call and I ended up making a appointment with him and it was the decision Ive ever made! I tried to bandage it with meds/antihistamines. I have never had histamine issues, thankfully; but I have many clients with them. How did you cure yourself? Bergamot oil may give you relief from the pain in your lower abdomen. I also take a probiotic tablet, 500mg of magnesium capsule, B12(1200mg). Hi Angela, I dont have a master list written down, but YES, great idea! Any advice would be greatly appreciated.. Hi Penelope. To clarify, the food intolerance evaluation is not a test and most doctors have not been trained to do it. I have eliminated fruits, I am vegetarian (by choice) but I eat fish,I am staying away from IC trigger fruits according to IC diet and finding what to eat has become a struggle. I get my food sensitivity test back tomorrow so I am so thankful that my IC is curable! I think coffee is generally irritating to bladder even if one doesn t have IC. The nutrients in foods help strengthen your immune system, heal wounds, stimulate nerve transmission, keep your blood flowing normally, and promote overall health. So worth it. This frees vitamin A from your liver so can even worsen bladder symptoms temporarily, but its good to have a big picture idea of some causes and options. But no supplement works in a vacuum, as you know, Im sure. Hi, Megan, thanks for the reply. . It gave me some sort of idea of where to start as I was so lost before. I hope yours is a good one, too!! I have cut dairy and gluten but I flared again even on my elixir and probiotics. He can send you the food intolerance kit in the mail. I have been gluten free and kindof was negligent taking Elmiron and now in flare. I dont do a lot of others, but they wouldnt affect IC issues if I did. Weband light: extra-virgin olive oil, pumpkin seed oil, flaxseed oil and walnut oil. eval. Hi Abhishek, it would be good to read this article on a low vitamin A diet as well as contacting Dr. Zeff for your food intolerance evaluation. Sleeping is difficult. WebBusiness, Economics, and Finance. Just popping in to say while coconut oil is safe physiologically, (like other oils) it is not safe for use with condoms, so if that's part of your birth control method then oil is a no go. Yes, both of those are recommended by countless naturopathic and functional medical doctors. I have a question for you though, are you able to have coffee or drink wine once in awhile? I dont push myself to drink an excessive amount of water, unless my bladder is very uncomfortable and I feel I need to flush it out. What are your thoughts on PFD, trigger points, etc. Eat lots of winter squash, with fat and honey on top. I went vegan 2.5 years a go and two weeks in i felt like a new woman. Its one of those diets that takes a few weeks to wrap your head around, because weve all been so steeped in the value of Vitamin A. Hi! Now it is s bladder killer. Have you had any flares? A damaged gut lining can lead to a leaky gut. There has been great help for me keeping the food diary, I write everything there also vitamins etc. Ive been trying to keep my spirits up but I just feel like Ill never feel normal again. I know this may seem shallow and too simplistic; but I have found that a lot of my clients who struggle with weight loss simply dont have the desire to eat till they are very full. How do you reccomend I start with the bone broth? Each flare I agonize over if and when it will go. Yay, Sarah, sounds perfect!! It seems I have more pain early in the morning getting up. He does it through the mail. I need to be strong for me, my family, my clients and my staff. What about white flour? My brother Jami referred me to you. After having our third child, in 2009, I got sick in many other ways. Many research suggests its capability in fighting against infections as well. Low histamine/anti histamine has given me the best digestive changes so far, but that is not a grain free diet by any means, as actually with Low histamine diet, meat has to be low, and fermented dairy has to be out. Keep figuring it out. I am 68 years old, Pastors wife and I am in pretty good condition. Its tough to diagnose, and though treatments can make life with it better, theres no cure. I am currently seeing a naturopathic doctor to try and heal IC naturally. Blessings, and yes, have hope! I have done a few allergy test through the lab with blood work and paid for myself. Removing all fruits from my diet was the key, without a doubt. It is also affected by stress and last but not least, IC is affected by what we eat and drink. Karen, it took me longer than most. Well, eventually I met my doctor, Jared Zeff ND, LAc*. You Dont Have to Live With Cystitis. I eat whatever I want now. Thank you so much for the reply and for your wealth of knowledge on this. Dr. Zeff is happy to consult with anyone regarding optimal diets for them and he can speak with patients via phone appointments, if youre not local to his area. Came back negative. The meat needs to be pasture-raised to be good for us. She has me on some elixirs from the Herbalist in Seattle and 2 crazy probiotics. Thank you for sharing your experiences and ideas with us all! May you be so blessed as to find a naturopathic or functional medical doctor as insightful as the one Ive found. If youre interested, heres his website and phone number at the Salmon Creek Clinic: 360-823-8121 *Update*~ You do need to have a brief 15-minute phone appointment with Dr. Zeff to get the food evaluation through the mail. You can do this! I try to eat fresh veggies, meat and eggsbut I love fruit! Im concerned that if we completely remove them, that we will starve the bacteria that lives on them and allows us to potentially break them down. So, go figure! *Dr. Zeff was named Naturopathic Physician of the Year in 1989 for his contribution to the development of naturopathic clinical theory. Today I am in remission. Monolaurin/lauric acid is antibacterial, antifungal and antiviral. You could also contact Dr. Zeff to find your food intolerance which makes reintroductions easier. They are the routes that allowed me to get well, also working with my doctor: a wellness diet, removing fruit and an elimination diet, as well as getting your food intolerance evaluation done. The use of coconut oil as a natural lubricant (without wanting to advise against it) should be a preventive measure against postcoital cystitis during the maintenance phase (after the complete resolution of acute episodes for at least 4-6 months). Any fruit at all, including cloves, *olive oil, curry, most vinegar, certainly apples and pears, is still fruit. Im not opposed to physical therapy for IC, but I dont have any personal experience with it. I look forward to talking with you more. They are the two I started with, while also eating very small amounts of sauerkraut and increasing very gradually over time. He helped my daughter by figuring out that her body cant digest dairy. What type of food sensitivity testing do you recommend? Ive just been helped amazingly by him, as has my daughter; and Im excited to hopefully share that dramatic potential with you. I try to cut out sugar and processed foodsnone of thise things are really good for us anyway. Bye for now Betty. Hi Kelly, Dr. Zeff does a Food Intolerance Evaluation. So please explain. Currently I make 3 baked goods a week: one egg-free for my youngest, one dairy-free for my teenager daughter who goes to high school and needs packed lunches, and one that's fruit-free. Its been years since I had that test, but I went to a medical specialist in IC. Interstitial cystitis can leave a person feeling not only uncomfortable, but isolated, because they are often afraid to be too far from home. I do dietary consulting, if that would help: http://eatbeautiful.net/consulting/ I do not believe that eating fruit in the first place is was caused the IC, though, btw. I try to follow the IC diet, I am gluten free for about 8 yrs now, the only fruit I eat is gala apples, pears, and bananas. I sent for the blood test and am anxious to see if there is something I have been missing that could be the link toward complete healing in this area. After that frosty he could eat dairy. It is also the best diet for everyone. And its helpful. What about learning from Eastern and other non-medical healthcare practitioners? Some of the most commonly used oils for this condition include lavender and sandalwood. I would take that step first. Dinner: pork chops with mashed potatoes and green beans. I tried to eat a little fruit and vitamins this last week in order to boost my immune system and of course all of the IC symptoms have returned. Not for those with histamine issues, but otherwise, bone broth is excellent for the ph of ones belly which sets all the digestive mechanisms functioning more properly, including the ileocecal valve. Claire_A ICN Member Join Date: Jan 2011 Posts: 385 Tweet #3 You'll receive a confirmation email shortly! I was on the GAPS Diet for years, just basic gut healing that was also benefiting my urethra and bladder. GameStop Moderna Pfizer Johnson & Johnson AstraZeneca Walgreens Best Buy Novavax SpaceX Tesla. Look for cold-pressed and extra-virgin. Lets take a further look at each one: I really enjoyed your story and trying to help people. Blessings! How do you know you have SIBO? Then youll know which food to cut, which food is tripping up your healing process. Yes, when my situation was acute, I did, because they have different roles. Thanks for your kind words!! Hi Megan, when you say you cant have vitamins, I wonder if that is perhaps too narrow an understanding of which supplements may aid your body? Make a few of these then put them in a plastic container and freeze them. Any suggestions? Ive had a similar experience. Thanks and have nice end of summer /fall time! Im feeling so hopeful that I might finally have a solution and get better! Another interesting fact about IC? That makes me so happy ? I found I was allergic to HUNDREDS of items due to the leaky gut.. even WATER, COTTON (yes my undies) and plastic were causing my pain. New year, New tricks . 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